Event, Video / 05 Sep 2018

World Skin Health Day

We recently marked a first for Australia by raising understanding of eczema on World Skin Health Day.

Some of our members have something they need you to understand. Please watch their video and messages.

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**One hour left to register**
👉https://itchy.group/05Oct22

Come for a chat and hear from other teens who are living with the challenges of eczema.

After you register, an email will be sent to you with a link to join the online meeting room. Looking forward to chatting soon!

#itchY #teenswitheczema #eczema

Happening tonight! Register to get the Zoom link: www.itchy.group/05Oct22
Parents and teens welcome
7pm AEST:
That's 7pm QLD time
8pm for NSW, VIC and TAS
7:30pm for SA and NT
5pm for WA

Are you a teenager with eczema – or know someone who would find comfort in meeting other teens with eczema?

Register for our teen connection event this Wednesday evening: https://itchy.group/05Oct22.

Hear from Eczema Support Australia teen ambassadors Rhea and Ranindu - who have both struggled with severe eczema during their teenage years. They will share their personal experiences and stories of how eczema has impacted their lives.

This is our first teen focused event. We also welcome parents to join this meeting. In sharing personal experiences, we hope to reach teenagers living with eczema to deliver messages of understanding, connection and support. No one should feel alone in this eczema journey.

TTeenagers living with eczema can often ask themselves, 'why me?' Connecting with others who understand living with eczema, especially as a teen, can be helpful and encouraging.

Join us online this Wednesday for a special event. Our teen ambassadors, Rhea and Ranindu - who have both struggled with severe eczema during their teenage years, will share their personal experiences and stories of how eczema has impacted their lives.

Find more information and register: https://itchy.group/05Oct22.

Find comfort in meeting and chatting with other teenagers who can relate to life's challenges with eczema. Together we can share understanding, connection and support in this teen community.

Teenagers with eczema (and parents welcome too) - Your first online connection event is happening in exactly one week. If you are yet to register, go to: itchy.group/05Oct22

Hear from our ambassadors as they share their personal stories of how they have coped with eczema. This is an open floor event, attendees are welcome to share and ask any questions.

“Seeing the positive impact that sharing both my medical knowledge and my personal insights into the challenges of living with eczema has on my younger patients is what has ultimately led me to founding the ‘itchY - Teenagers with Eczema’ platform. Eczema will always be a part of my life and will rear its head from time to time but I know that connecting with each other through this itchY journey will collectively give us the confidence that we are not alone.”

This is why Ranindu came onboard to help us create and launch itchY. itchY is a dedicated space for teenagers to share their experiences with eczema. Join our closed Facebook group: itchy.group/join.

Read more of Ranindu's story: www.eczemasupport.org.au/my-eczema-story-eczema-doesnt-discriminate.

Chat with Ranindu and other teenagers in our teenager’s connection online event, register here: www.eczemasupport.org.au/events/inside-eczema-teen-connection-event.

#itchY #TeensWithEczema #Eczema #EczemaSupportAustralia #ThisIsEczema

“Living with a chronic disease that is so misunderstood can leave people, especially young people, feel isolated. I wanted to create itchY to connect young teens with eczema to realise that they are not alone and that there are people in Australia who really do understand their situation. A realisation and feeling, that I believe, is so empowering.”

This is the driving force behind Rhea working with us to create itchY – an online platform for teenagers with eczema to meet and chat. Join itchY – closed Facebook group for teenagers: itchy.group/join.

Read about Rhea's eczema journey here: www.eczemasupport.org.au/my-eczema-story-rhea.

Register for our upcoming online teenagers connection event: www.eczemasupport.org.au/events/inside-eczema-teen-connection-event.

#itchY #TeensWithEczema #Eczema #EczemaSupportAustralia #ThisIsEczema

Thank you to all who submitted to our #InsideAtopicEczema campaign this year for World Atopic Eczema Day and thank you to our supporter, Avene Australia, @avene_au care for the hampers that will be going out to our three lucky draw winners: Laura, Jill and Elizabeth.

You still have an opportunity to participate in the next stage of our World Atopic Eczema Day advocacy by signing and sharing our petition: https://www.change.org/ESA_SaveOurSkin

TODAY IS World Atopic Eczema Day 2022
#InsideAtopicEczema SHARE TODAY.

We turned our clothes inside out for World Atopic Eczema Day to give a visible indication of how the burden of eczema impacts all aspects of life.

This year to mark World Atopic Eczema Day on Sept 14, we look inside atopic eczema and identify five major burdens of the disease: the burden of extreme physical pain and itch, burden on families and caregivers, burden on finances, burden on mental health, and burden of daily management.

Watch and SHARE our short video of some of the submissions we received for our ‘Inside Atopic Eczema’ campaign. Through campaigns like this, we raise awareness of the burdens eczema patients face every day.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

Today is RU OK? Day. Appropriate in the lead up to #AtopicEczemaDay to remember there is a high level of depression and frustration for patients with atopic eczema compared to other skin diseases.

So reach out for support and remember you are all well qualified to ask the question of "R U OK?"
A good place to start is through our closed groups: https://www.facebook.com/groups/AussieAdultswithEczema
https://www.facebook.com/groups/aussieeczemafamilies
Launching soon: https://www.facebook.com/groups/teenagerswitheczema
#RUOK #INSIDEATOPICECZEMA

LAST CHANCE TO GET INSIDE OUT.
Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

ONE MORE DAY to ....
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

I – IMPACTS EVERTHING! Eczema impacts all aspects of life – physical, psychological, social, developmental and financial.
*** “Comment if you can relate.” ***
People with eczema can withdraw from social contact or hide their pain under clothing, which means the agony of eczema remains invisible.

Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

N = NEVER ENDING. Parents of atopic eczema patients need to spend hours every day caring for their child’s skin; this takes focus way from other children. Not everyone 'grows out' of eczema. Teens and adults with eczema also feel the never ending burden of eczema regimes and medical appointments.
*** “Comment if you can relate.” ***
Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

S = SOCIALLY ISOLATING. Lonely. Avoiding social interactions because you feel self-conscious about the way you look. Nobody gets it, nobody understands.
*** "Comment if you can relate." ***
Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

I = ITCH. How itchy is eczema??? Itch is a misunderstood and underestimated burden of eczema. Many patients describe itch as all-consuming and worse than pain. This itch is often accompanied by pain caused by scabbing and the open wounds from the uncontrollable scratching.

Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

D = DAILY REGIMES. Topical treatments to help manage eczema are burdensome and messy, as they need to be applied every day which takes a lot of time. Patients are careful of food choices to avoid flare ups, and lots of consideration on soaps, fabrics, sanitisers and sun exposure.
*** “Comment if you can relate.” ***
Highlight the burdens of living with this eczema and enter our #InsideAtopicEczema campaign. We are calling on those affected by eczema (patients, their families and community) to submit a photo or short video wearing your clothes inside out to highlight the under-recognised burdens of this disease.
Submissions will be combined into a photo exhibition to be released on 14 September to mark #WorldAtopicEczemaDay.
And just for sharing your pic, you could WIN 1 of 3 eczema care packs.
Help us raise awareness about the far reaching impacts of this debilitating condition which affects 1 in 5 children and 1 in 10 adults.
📷 👉 SUBMIT YOUR PHOTO @ eczema.support/photo2022.

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.

E = EMPTY BANK ACCOUNT. Doctor’s visits, trips to specialists, as well as prescribed and over-the-counter medications are very expensive and quickly add up. Its not uncommon for patients to have to take sick leave or leave jobs altogether due to an inability to work or in order to care for children with eczema.
*** "Comment if you can relate." ***

Thank you to our friend, Deryn Thompson, Lecturer; Allergy Nurse; Eczema Educator RN. Deryn has provided us with a an updated guide on Eczema Tips in Times of Financial Stress. For the full article: https://www.eczemasupport.org.au/eczema-tips-in-times-of-greater-financial-stress/

#InsideAtopicEczema #ThisIsEczema #EczemaSupportAustralia #ESA #Eczema #AtopicEczema #RaisingAwareness #AtopicEczemaDay #CareForAtopicEczema #NotJustAnItch #EczemaLife #LifeWithEczema.